WORLD RARE DISEASE DAY
World Rare Disease Day is a time when the global community comes together in unity, to build voice, awareness and support for the hundreds of millions of patients and their families affected by rare disease. The Global Genes Project™ is a campaign sponsored by the RARE Project helping individuals and organizations to participate in this [...]
2012 RARE GALA OF CHAMPIONS
Thursday September 27, 2012 Balboa Bay Club, Newport Beach The RARE ‘Gala of Champions’ exists to recognize those people and organizations that have gone above and beyond, innovating and thinking outside the box, to champion for the millions of children and families affected by rare disease. Be prepared for an inspirational night of courage and [...]
Open Registry Project – ORP
Progression, symptoms, therapies, medications, research for a cure … Have you ever wanted to know how other patient experiences with the same disease compare to yours? Do you want to contribute your loved one’s medical history to research for your disease, similar diseases, and even across diseases? If so, the Open Registry Project is for [...]
Get Involved
World Rare Disease Day
February 29, 2012
Join us to bring awareness to RARE Disease on this very RARE day!
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The Global Genes Project™
The Global Genes Project™is our general public outreach initiative. Click to learn more about our 1Million for RARE™ awareness activities, 7000 Bracelets, etc. more ».
Connect to COMMUNITY
Open Registry Project™
Compare & share with others to improve your loved one's daily quality of life and benefit research! more »
RARE Meetups™
Meet with others in your local community to share resources, experiences and support. more »
Funding Research
The RARE Fund
The RARE disease research funding 'marketplace' for in-their-lifetime projects from dozens of researchers and foundations. Optimized for connecting via your social networks and donations of any size. more »