i have a brother named shaan
he has a disabilty called joubertsyndrome
he cant walk he cant talk he cant see very well either
when he was born he had a little bit of yellow on his skin.
he takes therapy he also loves toy with light and sound
and that about shaan what makes me sad about him is i wish he didint have joubert syndrome
what makes me happy about him is i know that when i see some body with a problem i care a lot.
By Shefali J. (age 7)




So great Shefali! We love that you care so much about helping other kids just like your brother. We are very proud of you and know that you will be setting a great example for other kids out there!!! Keep it up!!!
[...] a pony at his therapeutic riding program. He is a kindergartener at a full day program. He has a 7-year old sister who loves him and knows a lot about Joubert Syndrome. You can learn more about Joubert Syndrome, [...]