Don’t miss these other great Rare Disease Day events in DC!
Monday, February 27, 2012
Featuring: The Documentary “Fight to Live” with panel discussion led by Academy Award Winning Director Barbara Kopple.
Wednesday, February 29, 2012
The National Institutes of Health (NIH) will celebrate the fifth annual Rare Disease Day with a day-long celebration. Attendance is free, open to the public and will be webcast.
Featuring performances by Jonny Grave & the Tombstones, Benny, & Nelly Kate.
To benefit MarbleRoad a 501c3 non-profit: connecting people who have complex illnesses with resources to improve their lives.
Thursday, March 1, 2012
The Food and Drug Administration (FDA) will celebrate the fifth annual Rare Disease Day by hosting a “FDA Rare Disease Patient Advocacy Day” to engage and educate the rare disease community on regulatory processes related to rare diseases. Attendance is free. Registration is required. The event will be webcast.



