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Get Involved for World Rare Disease Day on February 29th

Blog Hop for Rare Disease – Please Read, Share and Raise Awareness!

By admin on January 30, 2012

There are less than 30 days to World Rare Disease Day on February 29. We kick off our campaign this year as host of a Rare Disease Blog Hop. Over 40 bloggers united to blog today to raise awareness about this important day and on ways that you can get involved. The statistics around rare [...]

Posted in Community, Family Life, Featured, Global Community, Global Genes Project | Tagged battens disease, children rare disease, CIDP, Citrullinemia, Cystinuria, Epidermolysis Bullosa, Fibromuscular Dysplasia, gaucher's disease, Hunter syndrome, Huntingtons disease, joubert syndrome, Kleefstra Syndrome, langerhans cell histiocytosis, LCH, Lennox-Gastaut Syndrome, Maple Syrup Urine Disease, Marfan Syndrome, mitochondrial disease, Moebius Syndrome, Nager Syndrome, Neimann Pick, orphan disease, orphan drug, pseudotumor cerebri, RARE Blog, Rare Disease, Rare Disease Day, sanfilippo syndrome, World Rare Disease Day | 13 Responses

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Blog Hop for Rare Disease – Please Read, Share and Raise Awareness!

THE DISEASE MAY BE RARE, BUT HOPE SHOULD NOT BE

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