Fundraising For A Rare Childhood Brain Disease – One Uncle's Journey to Make a Difference
This past year has been a year of uncertainty, rejection, and frustration day in and day out for both Matthew’s life and his family. Hearing a constant “NO” from insurance and literally fighting with these companies is more than exhausting. Matthew was born with a rare brain disorder called subcortical band heterotopia and needs highly [...]
My Journey into Rare Disease and the world of "No"
it’s become a pay it forward effect!