News
- The RARE List™ - You Must See it to Believe it!: 7,000 Different Rare Diseases and Disorders Comprise 65 Page...
- Rare Disease Bloggers Unite With "Blog Hop" to Raise Awareness for World Rare Disease Day 2012 and 1 Million For Rare™ Campaign: PRESS RELEASE Jan. 30, 2012, 5:29 p.m. EST Rare ...
- Charities Unite Worldwide to Fund Research into Reversibility of Brain Damage Caused By Sanfilippo Syndrome: Charities Unite Worldwide to Fund Research into Reversibilit...
- ACTION ALERT - World RARE Disease Day at National Institute of Health: Rare Disease Day at NIH (RDD@NIH) On February 29, 2012...
- In A Parents Words - Why RARE Disease Needs ULTRA!: Roy and Reed Zeighami, couldn't have articulated it better -...
Family Life
- RARE Disease Events: Don't miss these other great Rare Disease Day events i...
- RARE Disease Lobby Day: WHEN: February 28, 2012 WHERE: Washington...
- Managed Named or Compassionate Access to Drugs Still in Clinical Trial: I am participating in an interview tomorrow on early access ...
- Sempra Energy and Kids Helping Kids Volunteers Supporting Global Genes Project: Sempra Energy Foundation and Southern California rare di...
- Patient Stories of Hope and Inspiration: Patient Stories of Hope and Inspiration – To be shared with ...
Advocacy/Policy
- RARE Disease Events: Don't miss these other great Rare Disease Day events i...
- Brad Paisley Lends Voice to New Song "Hard Life" to benefit A-T Children's Project: Brad Paisley sings new song written by Joe Kind...
- Clinical Development Program in LAL Deficiency: LAL Deficiency, a lysosomal storage disorder, has early and ...
- Enter to win an iPod Touch through the EveryLife Art Contest!: Easy to enter! Just upload a photo of your art on RareArtis...
- Cal-State Fullerton Students Champion RARE Disease: We are a group of five seniors at Cal-State University, Full...