Be part of the celebration!
Thursday, September 27, 2012
At the Beautiful Balboa Bay Club, Newport Beach
6:00pm arrival, 6:30pm cocktails
7:30pm dinner and awards
The R.A.R.E Tribute to Champions of Hope™ exists to recognize people and organizations that have gone above and beyond, innovating and thinking outside the box, to champion for the millions of children and families affected by rare diseases.
Be prepared for an inspirational night of courage and compassion. Awards and recognition will be given to a variety of rare disease stakeholders including: individuals, patients, patient advocacy organizations, physicians, researchers, research institutions, biotechs, pharma, policy makers, and corporate consumer brands.
Awards recipients will be nominated by the rare disease community. This night will provide a unique opportunity to engage those that are working with rare disease champions everyday! Special marketing and social media efforts will begin in early 2012, encouraging nominations for a variety of awards.
Thank You Sponsors and Supporters!
Gold Sponsors:
Everylife Foundation, Pfizer, Shire
Silver Sponsors:
BIO, Centric Health Resources
Bronze Sponsors:
Amicus Therapeutics, Genzyme, Synageva, Engage Health
Additional Support:
- Addington Confections
- Nestle Waters
- Sidney Frank Importing Co.
- Black Starr & Frost Jeweler
















