Every child & adult with RARE disease, everywhere, regardless of disease, deserves treatments, therapies and support.
It’s exciting that people working tirelessly to bring effective therapies and treatments to children and adults suffering from rare diseases and disorders. The RARE Fund™ will promote innovations in science and clinical research that will impact people in their lifetime! And the RARE Fund™ will make it easy to search and support the rare community of people in need! Anyone can participate!
Funding Novel Research in a Novel Way
Today there are new models for discovery and development in research that allow, non-profit organizations, parent advocates and translational researchers to play an active role in identifying and advancing promising therapies for people affected by rare diseases and disorders. This transformation is changing the way researchers and drug makers think about rare diseases and helping accelerate research for this community in need!
Let’s get excited about progressive science that is working to help the 1 in 10 suffering from a RARE disease! Let’s get involved, by helping support those dedicating their lives to help bring treatments and therapies!
RARE Fund™ Mission
Our mission is simple — we want to catalyze and support the development of effective rare disease ‘in-a-lifetime’ research, therapies and treatments.
The RARE Fund™ is an initiative of the R.A.R.E. Project, a 501c3 organization.
How RARE Fund™ Works
If you are a potential donor, the process is simple. You peruse various research projects, read the stories and donate through a secure and easy check out. If you would like to be a regular contributor, consider creating a donor page and checking in often. Tools will allow you to form a team to easily reach out to your friends and family to support projects that match your interests.
If you are representing research and are interested in becoming a RARE Fund™ beneficiary, you simply submit details of your research project. Once submitted, a RARE Fund™ Program Director will contact you, evaluate your research project project and prepare the project for submission to our RARE Fund™ Review Board.
If you are a foundation raising funds for specific RARE disease research projects, you will have a customized landing page listing only projects you decide to feature. Your donors will stay focused on your projects and you will be provided all donor contact information for subsequent follow-up.
100% of the monies raised on the RARE Fund™ site will go to rare disease research. We offer the RARE Fund™ platform to the RARE community free of charge.
We anticipate the RARE Fund™ to launch in 2012.
RARE Fund™ Review Board
The RARE Fund™ Review Board is composed of experts with relevant experiences which qualify them to ensure that submitted research meets the criteria for inclusion. We will not publish board member names to guarantee an unbiased review of the research being submitted. The review board is comprised of experts in science, research innovation, finance, and business.