23andMe

GLOBAL GENES PROJECT – NEWS AND UPDATES

By nboice on March 31, 2011

Global Genes Project E-News It’s a Wrap – Rare Disease Day 2011. DANA POINT, Calif. – The 4th Annual World Rare Disease Day took place February 28, 2011 with a fanfare of activities worldwide! Sponsoring organizations like NORD and Eurordis engaged in more activities and awareness efforts, garnering increased attention and engagement than previous years. [...]

Posted in Advocacy/Policy, Global Community, Global Genes Project, Kids Helping Kids, News | Tagged 000 bracelets, 23andMe, 46nyc, 7, amicus, BioMarin, blue denim ribbon, childrens rare disease network, Dick Gephardt, Eurordis, Extraordinary Measures, Francis Collins, Global Genes Project, healthline, House Majority Leader, illumina, John Crowley, Keck Graduate Institute, Lundbeck, NIH, NIH Office of Rare Diseases Research, NORD, novartis, orphan disease, Pfizer, PhRMA, Pompe Disease, Rare Disease, Rare Disease Legislative Advocates, rare disorders, shire, Steve Groft, World Rare Disease Day | 1 Response

Genetic Testing: Consider it for the holidays!

By nboice on December 13, 2010

A special offer for the holiday offered by 23andMe We have been discussing with various experts the importance of genetic testing and what it means for our families. There are many organizations that are providing genetic testing services that are reliable, have trusted technology and provide insights into our individual health. 23andMe, one of the [...]

Posted in Bench to Bedside, Genetic Testing, Global Genes Project, News | Tagged 23andMe, Alzheimers, children rare disease, genetic testing, orphan disease, orphan drugs, Rare Disease | Leave a response

'Denim Jean' Ribbon Unveiled To Promote Rare Disease Awareness

By nboice on February 1, 2010

Campaign Brings Together Support from over 90 Corporations, Non-Profit Foundations, Research Institutions, Hospitals and Advocacy Groups; New Blue Jeans Denim Ribbon Unveiled To Promote Rare Disease Awareness DANA POINT, CA – February 1, 2010 – Hope – It’s In Our Genes.™ The Children’s Rare Disease Network today announced the Global Genes Project, an initiative designed [...]

Posted in Featured, Global Community, Global Genes Project, News | Tagged 23andMe, Amicus Therapeutics, Better Health, BioMarin, CheckOrphan, Children, children wtih rare disease, childrens rare disease network, CollabRx, Coriell Institute, Counsyl, denim ribbon, DonateGames.org, FasterCures, FreeForm, genetic alliance, Geni.com, Genzyme, Global Genes Project, hide and seek foundation, Jackson Laboratory, Kakkis EveryLife Foundation, Knome, Life Technologies, Lili Claire Foundation, Mayo Clinic and Shire, NIH, Orphan Drug Act, Public Health, Rare Disease, rare disorders, therapy development, World Rare Disease Day | Leave a response

23andMe

GLOBAL GENES PROJECT – NEWS AND UPDATES

Genetic Testing: Consider it for the holidays!

'Denim Jean' Ribbon Unveiled To Promote Rare Disease Awareness

THE DISEASE MAY BE RARE, BUT HOPE SHOULD NOT BE

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