Amicus Therapeutics

CBI ANNOUNCES PARTNERSHIP WITH CHILDREN’S RARE DISEASE NETWORK AND THE GLOBAL JEANS PROJECT

By nboice on April 28, 2011

BOSTON, MA – The Center for Business Intelligence (CBI), a division of Advanstar Communications, is pleased to announce a partnership with the Children’s Rare Disease Network and The Global Jeans Project for the 6th Annual Rare Disease Leadership Summit coming up July 12 – 13, 2011 at the Doubletree Hotel in Washington, D.C. There is [...]

Posted in Advocacy/Policy, Global Community, Global Genes Project, News | Tagged Advanstar Communications, Almac, Amicus Therapeutics, BioGenerator, CBI, Centric Health Resources, childrens rare disease network, CORD, CRN, Cryer Health, FDA, Genetic Alliance UK, Global Genes Project, Health Canada, Kakkis EveryLife Foundation, Keck Graduate Institute, MME, Mobius Therapeutics LCC, NIH, orphan disease, orphan drugs, Pfizer Inc, Plexius, Rare Disease, Rare Disease Leadership summit, rare disorders, shire, Siren Interactive, the Center for Business Intelligence, Viropharma Incorporated | Leave a response

'Denim Jean' Ribbon Unveiled To Promote Rare Disease Awareness

By nboice on February 1, 2010

Campaign Brings Together Support from over 90 Corporations, Non-Profit Foundations, Research Institutions, Hospitals and Advocacy Groups; New Blue Jeans Denim Ribbon Unveiled To Promote Rare Disease Awareness DANA POINT, CA – February 1, 2010 – Hope – It’s In Our Genes.™ The Children’s Rare Disease Network today announced the Global Genes Project, an initiative designed [...]

Posted in Featured, Global Community, Global Genes Project, News | Tagged 23andMe, Amicus Therapeutics, Better Health, BioMarin, CheckOrphan, Children, children wtih rare disease, childrens rare disease network, CollabRx, Coriell Institute, Counsyl, denim ribbon, DonateGames.org, FasterCures, FreeForm, genetic alliance, Geni.com, Genzyme, Global Genes Project, hide and seek foundation, Jackson Laboratory, Kakkis EveryLife Foundation, Knome, Life Technologies, Lili Claire Foundation, Mayo Clinic and Shire, NIH, Orphan Drug Act, Public Health, Rare Disease, rare disorders, therapy development, World Rare Disease Day | Leave a response

Amicus Therapeutics

CBI ANNOUNCES PARTNERSHIP WITH CHILDREN’S RARE DISEASE NETWORK AND THE GLOBAL JEANS PROJECT

'Denim Jean' Ribbon Unveiled To Promote Rare Disease Awareness

THE DISEASE MAY BE RARE, BUT HOPE SHOULD NOT BE

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