'R.A.R.E.' BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
The RARE Project Announces Big Team Additions, Setting the Stage For Continued Success Thirty (30) million people in the US and 350 million people worldwide are affected by rare disease. Rare disease affects more children and their families then AIDS and CANCER combined worldwide. The RARE Project, developed by various rare disease leaders, is an [...]
AT Children's Project inspiring it's community to 'Get Involved' this World Rare Disease Day!
Today, AT Children’s Project promoted to it’s community what they have created to support World Rare Disease Day, and the benefit to their community. ATCP has created a plan that can be mirrored by other rare disease organizations as well. They have created a platform based on the Global Genes Project that will make it easy for their [...]
AT Children's Project Takes To The Seas – 'Transat Sail Race' creating greater awareness for Rare Disease
Rémi Aubrun, a sailmaker, innovator, and skipper, departed France on September 13, 2009 in a sailing race called the “Transat” in honor of Caroline Corre who has A-T. The proceeds from his sponsorships will benefit the A-T Children’s Project. The Transat 6.50, previously known as Mini Transat, is a grueling, transatlantic solo race of 4,200 [...]