The Council of Mothers (and a few devoted dads)
The Council of Mothers (and a few devoted dads) convenes as necessary in the wee hours of the morning, the midday afternoon on holidays, the Tuesdays after checkups and at all other times deemed necessary by its members. Together we share one another’s questions, worries, and our greatest common fear – the loss of our [...]
Rare Disease, from the perspective of family friends.
To know Nora, Ayrie and Shiya is to absolutely love them. Spend an hour with Nora and you’ll see how much she cares for her boys, spend a day with her and you’ll see how strong she fights, spend a couple more years with her and realize what perseverance really means. Our relationship with Nora [...]