A Fifth Season…Brightening the Landscape of Batten Disease
Rare Disease Event: Three Foundations Form First Chicago Partnership To Fight LINCL-Batten Disease Jasper Against Batten, Hope 4 Bridget and Noah’s Hope To Collaborate with Partnership For Cures One man ran across the United States to help children with Batten disease. Will you drive across town to help? Please join us on May [...]
Batten Disease Awareness Weekend Bringing Hope for Children with a Fatal Disease—and No Cure in Sight June 3-5, 2011
Batten Disease Awareness Weekend Bringing Hope for Children with a Fatal Disease—and No Cure in Sight June 3-5, 2011 June 1, 2011 (Reynoldsburg, OH) – Batten Disease Support and Research Association (BDSRA) is holding its 3rd annual Batten Disease Awareness Weekend, June 3-5, 2011 to bring recognition to a rare but devastating disease. Batten disease [...]
GLOBAL GENES PROJECT ANNOUNCES “WEAR THAT YOU CARE™” DENIM AWARENESS CAMPAIGN FOR RARE DISEASE DAY 2011
Statistics Show 95% of Rare Diseases Have No FDA Approved Drug Treatments; Only 352 New Drugs Developed and Approved For Tens of Millions of People Since 1983 DANA POINT, Calif. – January 26, 2011 – Monday, February 28, 2011, is the 4th annual Rare Disease Day — a day when people worldwide will show their [...]
The Global Genes Project Aims to Battle Rare Disease Through the 'Vote4Hope' Campaign and Pepsi Refresh Competition
The Global Genes Project Aims to Battle Rare Disease Through The ‘Vote4Hope’ Campaign and Pepsi Refresh Competition Over 15 Million Children in America Are Estimated To Suffer From 7000 Unique Rare Diseases; Children Unite As ‘Ambassadors of Hope’ To Win $250K Pepsi Grant For The Global Genes Fund DANA POINT, CA – September 1, 2010 [...]