Blog Action Day for Rare Disease

Blog for Rare, a success and follow-up!

By Catherine Calhoun on February 27, 2010

Feedback so far from Blog for Rare (I can’t resist a kind word): Thanks for the wonderful opportunity – Love this! (Tanya Lachance) Looks great, thanks Catherine! (Yolaine Dupont) Thanks! This has been on my To Do list for 4 days. ‘Glad I got it DONE! (Hug Your Kids Today) (Elizabeth Joshi commented on your [...]

Posted in Featured, Global Community | Tagged #blog4rare, #specialteams, Blog Action Day for Rare Disease, Blog for Rare, Blog for Rare 2010, children's rare diseases, Collaboration, Dave Lucas, Geeta Nayyar, Global Genes Project, Global Rare Disease Day, Huffington Post, Jeans for Rare Disease, Kakkis, Rare Disease, Rare Disease Awareness, Rare Disease Support, Rock N' Roll Marathon, Running for Rare Disease, World Rare Disease Day | 10 Responses

Blog for Rare! Bloggers from around the world come together for rare disease awareness and support for World Rare Disease Day 2010 (Feb. 28). #blog4rare

By Catherine Calhoun on February 21, 2010

Welcome to the first official “Blog for Rare.” We’re bringing people from across the world together this week in celebration of World Rare Disease Day 2010 (February 28). This SNiPs post is a mix of web links to specific blog posts and to bloggers who have a connection to rare disease (a blog roll [...]

Posted in Featured, Global Community | Tagged #blog4rare, #raredisease, Blog Action Day, Blog Action Day for Rare Disease, Blog for Rare, Blog for Rare 2010, Children, Children with Rare Disease, childrens rare disease network, Collaboration, communication, connecting children and families with rare disease, Genetics, Genzyme, Global Effort, Global Effort for Rare Disease, Global Genes Project, joubert syndrome, kids, National Institutes of Health, NIH, NORD, pediatric rare disease, public awareness, Rare Disease, Rare Disease Awareness, Rare Disease Research, Rare Disease Support, rare disease treatments, rare disorders, SNiPs, Together for Rare Disease, Together for Rare Diseases, Undiagnosed, World Rare Disease Day | 2 Responses

Blog Action Day for Rare Disease

Blog for Rare, a success and follow-up!

Blog for Rare! Bloggers from around the world come together for rare disease awareness and support for World Rare Disease Day 2010 (Feb. 28). #blog4rare

THE DISEASE MAY BE RARE, BUT HOPE SHOULD NOT BE

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