50/50 and Neurofibrosarcoma
50/50, a film starring Seth Rogen and Joseph Gordon-Levitt based on the true story of Will Reiser who is a survivor from a battle against a rare cancer of the spine. // The Children’s Tumor Foundation seeks to improve the health and well being of individuals and families affected by the neurofibromatoses (NF).
Hey Now, You're a Rock Star
The Burrill Report (November 29, 2010): Hey Now, You’re a Rock Star (.MP3,14.46 Mb) Blondie’s Debbie Harry and Blondie’s Debbie Harry and Poison’s Brett Michaels are featured in a new GQ Magazine spread along with some of the world’s leading scientists who are trying to unlock the mysteries of the costliest diseases faced by mankind. [...]
Alex's Lemonade Stand – Fighting Childhood Cancer One Cup At A Time
At the age of 4, Alex decided she wanted to set up a lemonade stand and use the money to help doctors find a cure for her cancer
New Approaches To Treatment Needed In Pediatric Cancer – Patient Podcast Series #3
In this third in a series of podcasts focused on rare disease patient advocates jointly produced by The Burrill Report, the California Healthcare Institute, and the Children’s Rare Disease Network, we speak to Susan Cornelius, business advisor to The Nicholas Conor Institute for Pediatric Cancer Research. When her granddaughter struggled against cancer, she was frustrated [...]
Podcast Series #2 – A New Model for Funding Research
In this second in a series of podcasts focused on rare disease patient advocates jointly produced by The Burrill Report, the California Healthcare Institute, and the Children’s Rare Disease Network, we speak to Beth Anne Baber, CEO of The Nicholas Conor Institute for Pediatric Cancer Research. When Baber’s son Nicholas was diagnosed with stage 3 [...]