Increased Patient Participarticipation in the Fight Against Rare Disease
The Institute of Medicine (IOM) issued a new report: “Rare Diseases and Orphan Products: Accelerating Research and Development” which calls for increased participarticipation by people with rare diseases.
Rare Disease wins spot as Top 10 Idea at Change.org!
We did it! Link HERE. More details soon. Thank you to everyone who made this happen! Recommend on Facebook Share on Linkedin share via Reddit Share with Stumblers Tweet about it Subscribe to the comments on this post Print for later Bookmark in Browser Tell a friend
"Top Ideas" Final Round, Vote for Rare Disease!
Rare Disease made the final round for the 2010 Change.org Top Ideas Contest. We beat out hundreds of ideas to make the finals and now must reach the top 10 out of 60 final ideas. Voting ends Friday, March 12 at 5 p.m. EST. This is truly an amazing chance to make rare disease [...]