CHARCOT-MARIE-TOOTH AWARENESS MONTH AIMS TO DRAW ATTENTION TO LITTLE-KNOWN, BUT WIDESPREAD DISEASE
Nationwide and Global Events Scheduled Throughout September 2011 to support Charcot-Marie-Tooth disorder A month dedicated to one of the most commonly inherited peripheral neuropathies in the world – Charcot-Marie-Tooth disorder (CMT) – has been planned throughout September 2011, as proclaimed by the national Charcot-Marie-Tooth Association (CMTA). Together with a group of committed patients, family members [...]
The Global Genes Project Aims to Battle Rare Disease Through the 'Vote4Hope' Campaign and Pepsi Refresh Competition
The Global Genes Project Aims to Battle Rare Disease Through The ‘Vote4Hope’ Campaign and Pepsi Refresh Competition Over 15 Million Children in America Are Estimated To Suffer From 7000 Unique Rare Diseases; Children Unite As ‘Ambassadors of Hope’ To Win $250K Pepsi Grant For The Global Genes Fund DANA POINT, CA – September 1, 2010 [...]