Brothers And Sisters Need Support Too – ForeverSibs!
ForeverSibs provides support for siblings of kids affected by rare disease! ForeverSibs was founded in 2009 in an effort to acknowledge the siblings of children who are affected by a rare disease/disorder, or autism. The mission of ForeverSibs is to honor and recognize the unique role of brothers and sisters of children with medical and [...]
Rare Disease Family in the Limelight! The TODAY Show – Tuesday June 22
Derek Seymour, an 11 year old boy with the rare disease Joubert’s Syndrome, will be on the NBC TODAY SHOW tomorrow morning JUNE 22ND. Please tune in and spread the word about our rare disease friends giving national attention to our community. Al Roker will be visiting the Eagle Mount program in Bozeman, Montana where [...]