ACTION ALERT – World RARE Disease Day at National Institute of Health
Rare Disease Day at NIH (RDD@NIH) On February 29, 2012, the National Institutes of Health (NIH) will celebrate the fifth annual Rare Disease Day with a day-long celebration and recognition of the various rare diseases research activities supported by the NIH Office of Rare Diseases Research, the NIH Clinical Center, other NIH Institutes and Centers; [...]
7,000 Bracelets for Hope™ – Donate or Sign up to recieve yours today!
7,000 Bracelets for Hope Continues throughout 2012 The 7,000 Bracelets of Hope campaign has already inspired hundreds of bracelet designers from all around the globe to join in helping champion the rare disease community by supporting this important cause! Bracelet donations are being accepted and families are still encouraged to register to receive one of [...]
Charleston|Orwig Goes Blue For Global Genes Project supporting rare disease!
I’ve heard of going green but going blue is good too. That’s what the staff at Charleston|Orwig, Inc. is doing by wearing blue jeans each day during September. They’re doing it “not for comfort, but for hope.” Wearing jeans serves as a reminder to vote for the Global Genes Project in the online Pepsi Refresh [...]
Students Prepare for World Rare Disease Day with Blue Jeans Denim Ribbons.
Check out this article on students getting a jump on World Rare Disease Day — see news article here. Recommend on Facebook Share on Linkedin share via Reddit Share with Stumblers Tweet about it Subscribe to the comments on this post Print for later Bookmark in Browser Tell a friend
Announcing Global Genes Project!!! Wear Jeans, help sick kids!
Finally the rare disease community has their ‘pink ribbon’! With a community of 100 million strong in the US and equal those numbers in the EU this community is deserving of the same energy, efforts, attention and support as some of the big individual diseases like AIDS and Breast Cancer. We live in a time [...]