etsy

7,000 Bracelets for Hope™ Campaign Raises Awareness For Over 7000 Rare Diseases

By nboice on February 8, 2011

Global Genes Project To Distribute Thousands of Donated Blue Bracelets To Children and Parents on Rare Disease Day 2011 DANA POINT, Calif., February 8, 2011 – February 28, 2011, is Rare Disease Day, but at the Global Genes Project, it’s rare disease awareness day every day of the year. Leading up to Rare Disease Day [...]

Posted in Advocacy/Policy, Family Life, Global Community, Global Genes Project, Kids Helping Kids, News | Tagged 000 Bracelets of Hope, 7, Adorned, Allen Girl Designs, Alyson Garvey Jewelry Designs, Amber Woodward, Amy Giesen, Anne Manninen, BBBDesigns, BeadsKnitsAndBits, Bee's Baubles, Believe In Abilities, Brea McClain, BuzzyBizzyBeads, Carol Hudgions, Cheers To July, Chevin Terrado Designs, childrens rare disease network, Crafty Jewelry, Delta Xi Chapter of Phi Sigma Sigma sorority at Binghamton University, demoiselle 16, Designs by Stevie J, Dr. Emil Kakkis, EC Jewelry Design, etsy, Fat Dog Beads, FDA, Food and Drug Administration, Gabrielle's Gift Inc., Gamut, Glassbaker Inc, Global Genes Project, GottaSpoilem Gems, GypsyChique, HandHeadHeart, Happy Mango Beads, Inc., Irene Celori, Jamie Barlow, Janet's Gems, Jewelry by Jennifer Pride, Jewelry by Sosalyn, Jewelry Creations by Lizardpoint, Jewelry Link Gemstones, Kakkis EveryLife Foundation, Kaplow, KAT Creations, KatieDot Designs, Kim Wilson, Kimmykin's Boutique, KraftD, Kreations by Karlee, Lacey Ryan, Lana Chayka Designs, LLC., Lynn Warner, Made by Susan, Mami's Gem Studio, Melissa Mansfield, Memory Maker Bracelet, Murphy Originals, My Leilani Designs, National Institute of Health, Native Spirit Jewelry, NIH, Original Designs for You, orphan disease, orphan disorders, Orphan Drug Act, Patty Haas, Peace of Mind Handcrafted Jewelry, Peace Unique, Perfect Accents by Lori, Petals N' Things, PG's Gemspiration, Pickled Beads Jewelry, Rare Disease, Rare Disease Day, rare disorders, Rhea's Renderings, Royzle Designes, Rozeza's Creations, Sedgeworks, Serenity's Jewelry and Gems, Spider Baby Danger Kitten, Sylvia May Forrest, The Purple Lady, Three Fates Design, Timex, Treasure4Ever, Wendy Liu, WhatKnotShop and Wild Shimmer Designs, World Rare Disease Day | 1 Response

An overwhelming show of support for the Global Genes Project – 7000 Bracelet Campaign

By Amy Grover on November 12, 2010

The Global Genes Project The other day I was contacted by a mother of a child with a rare genetic disorder. She wanted to know if I would donate a bracelet to the Global Genes Project for their 7000 bracelets of hope. This is a fantastic project that is helping to raise awareness for rare [...]

Posted in Community, Family Life, Global Community, Global Genes Project | Tagged 7000 Bracelets, bracelet, children's rare disease, etsy, orphan disease, Rare Disease, rare genetic disorder | Leave a response

Blue Jean/Denim Inspired Bracelet, lovely way to raise rare awareness.

By Catherine Calhoun on July 8, 2010

I love this blue jean/denim inspired bracelet, it reminds me of the ones from when I was a kid that we’d get at the beach in a natural color, tie on, keep on until it fell off from wear. I’ll be wearing this for rare disease awareness just as soon as it arrives! And then [...]

Posted in Global Genes Project | Tagged etsy, Global Genes Project, Rare Disease Awareness, rare disease awareness bracelet | 2 Responses

etsy

7,000 Bracelets for Hope™ Campaign Raises Awareness For Over 7000 Rare Diseases

An overwhelming show of support for the Global Genes Project – 7000 Bracelet Campaign

Blue Jean/Denim Inspired Bracelet, lovely way to raise rare awareness.

THE DISEASE MAY BE RARE, BUT HOPE SHOULD NOT BE

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