Tips to help your doctor put the “Missing Clues” together by Dr. Geeta Nayyar
This is my first post on the R.A.R.E. Blog and I would like to say how honored I am to have been invited to be a contributor. I really admire the mission of this network and hope that I can be valuable in some small way. As a Rheumatologist, who sees patients with rare diseases [...]
The Children's Rare Disease Network Launches Valuable Informational Blog
R.A.R.E. Blog is a Place for Families Affected by Rare Childhood Diseases to Learn and Share Resources. Dana Point, Calif. (June 9, 2010) – For the approximate 22.5 million families with children affected by rare disease, a place to find and broadly share information with other affected families is vital. The Children’s Rare Disease Network [...]
Blog for Rare, a success and follow-up!
Feedback so far from Blog for Rare (I can’t resist a kind word): Thanks for the wonderful opportunity – Love this! (Tanya Lachance) Looks great, thanks Catherine! (Yolaine Dupont) Thanks! This has been on my To Do list for 4 days. ‘Glad I got it DONE! (Hug Your Kids Today) (Elizabeth Joshi commented on your [...]