Hereditary Inclusion Body Myopathy (HIBM) HAS NEW CHAMPIONS AND REAL HOPE
Rocking It For Rare Disease! If anyone can do it, Dr. Emil Kakkis can. One of the rare disease communities scientific champions (also one of GQ Magazines recognized Rock Stars of Science), Dr. Kakkis comes at his science with a passion and ferver that moves mountains. How incredibly lucky is this community to have a [...]
Nominate Your Rock Star of Science!
Geoffrey Beene Gives Back®’s hip new campaign, “Rock Stars of Science” (a.k.a Rock S.O.S) is making its mark, and The Children’s Rare Disease Network is proud to be affiliated with this important initiative! Geoffrey Beene Gives Back® teamed up with GQ Magazine to create a philanthropic campaign pairing A-list rock stars and celebrities with the [...]