Getting Out More than You Put In: Advocates for Health
The Afternoon Nap Society Getting Out More than You Put In A Guest Blog submission by: The Afternoon Nap Society It’s a matter of return on investment. We give. We give our time, our energy, our talents. what do we get in return? What do we get out of what we put in? In [...]
NeuroDetour: A Conversation with Melanie Miller #FlameHeART
The Flammable Heart Exhibition is coming up Aug 7-13 for National Health Center Week. This post is a brief but candid look at the world of complex illness, and how MarbleRoad is trying to find creative ways to help people in need.
Statement from Howard Liebers on Proposed Budget Cuts
A statement from Howard Liebers on the House Appropriations Committee’s proposed budget cuts, particularly its impact on community health centers, national service, health information technology, and rare disease.
Anti-ACA Litigation, Extenders Act and Rare Disease Day 2011
A legislative update on anti-ACA litigation, the Medicare and Medicaid Extenders Act of 2010, and Rare Disease Day 2011. Oh, and HAPPY HOLIDAYS!
First unified protocol to provide primary care to rare disease patients introduced in Spain
The Spanish Society of Family and Community Medicine, has recently released an unified on-line protocol to improve the Primary Care for patients with Rare Diseases.