The Grassroots Movement Behind Ultra and Fast: Join the Movement!
A Guest Blog by Julia Jenkins: Director of Government Relations, EveryLife Foundation The Grassroots Movement Behind ULTRA-FAST & How you can join the Movement! We are very excited to share the news that rare disease Accelerated Approval language made it into the House draft PDUFA bill. The language that incorporates the goals of [...]
Unprecedented Cuts to Research: Send This Message to Congress Today!
The House of Representatives is currently crafting a spending bill that may include unprecedented funding cuts to NIH, NSF, CDC, AHRQ and FDA. These cuts represent a major threat to the nation’s health, job growth and competiveness. It is critical that you contact your representatives TODAY so they know that cuts to American research are unacceptable. [...]
Nominate Your Rock Star of Science!
Geoffrey Beene Gives Back®’s hip new campaign, “Rock Stars of Science” (a.k.a Rock S.O.S) is making its mark, and The Children’s Rare Disease Network is proud to be affiliated with this important initiative! Geoffrey Beene Gives Back® teamed up with GQ Magazine to create a philanthropic campaign pairing A-list rock stars and celebrities with the [...]