Improve FDA’s Rare Disease Review Process
The Jewish Daily – FORWARD Opinion By Jonathan Jacoby The Jewish community has long been a leader in supporting medical research and education efforts, especially with regard to those diseases that disproportionately afflict people of Ashkenazi Jewish descent. Creating coalitions with other patient advocates in the rare disease community would give American Jews an opportunity [...]
The Global Genes Fund – To Help Bring New Money, Interest and Champions to the Rare Disease Community
Their exists an inherent need to bring more money into the rare disease community to fund research. Individual rare disease specific organizations work tirelessly to try and raise capital to fund various research projects, with the hope of bringing new therapies, treatments and cures to their communities children. Recently Jonathan Jacoby, CEO RARE Project and [...]
PATIENTS EMBRACE VIRTUAL BIOTECHS TO DEVELOP DRUGS FOR THEIR CONDITIONS
As a business model, the notion of the virtual biotech by some estimates has been around for as long as 25 years. But for people afflicted with a rare disease and their families, the notion of the virtual biotech is generating energy and enthusiasm around raising funding to create ad hoc teams to conduct specific [...]