Act now to get your representative to sign on to the Medical Foods Equity Act (H.R. 4926) to support people with phenylketonuria (PKU) and other metabolic disorders!
Posted in Advocacy/Policy, Take Action | Tagged childrens rare disease network, christine brown, dick michaux, Fred Upton, Joseph Crowley, marbleroad, medical foods equity act, metabolic disorders, orphan disease, Orphan Drug Act, Phenylketonuria, pku, Rare Disease, rare disease caucus, richard michaux, tammy baldwin |
John Crowley announced the Rare Disease Caucus this week (link here). Leaders include Congressman Fred Upton and Congressman Joseph Crowley. This is exciting news for the rare disease community. Hoping great things come from this. // CC Recommend on Facebook Share on Linkedin share via Reddit Share with Stumblers Tweet about it Subscribe to the [...]
