Meet Shefali J., Our first guest sibling blogger (age 7).
i have a brother named shaan he has a disabilty called joubertsyndrome he cant walk he cant talk he cant see very well either when he was born he had a little bit of yellow on his skin. he takes therapy he also loves toy with light and sound and that about shaan what makes [...]
A Very Rare Day – Face to Face with Rare Disease
This past Sunday, Sept 21, 2008 we were honored to host 11 families and children afflicted with various types of rare diseases. This was an incredibly powerful day for the team at The Project Charity – The Children’s Rare Disease Network. We were able to hear from these families directly and listen to their stories of hope for cures [...]