national organization for rare disorders

The Tour de France and Testicular Cancer

By Howard Liebers on July 25, 2010

Testicular cancer is rare, and bone marrow transplant services are difficult to access for advanced stage tumors.

Posted in Advocacy/Policy, Take Action, Wellness | Tagged Be the Match Registry, bone marrow transplant, childrens rare disease network, congressional caucus, Diane Dorman, howard liebers, Kakkis EveryLife Foundation, lance armstrong, livestrong, marbleroad, National Marrow Donor Program, national organization for rare disorders, NORD, Office of Rare Diseases, Rare Disease, Senate HELP Committee, testicular cancer, tour de france | 1 Response

Make Your Voice Heard

By Howard Liebers on May 17, 2010

Howard is collecting your stories, comments, recommendations, etc. for the FDA’s hearing on rare disease in June 2010. Howard will also be representing MarbleRoad at the NORD Partners in Progress 2010 Gala in Washington DC on May 18, 2010.

Posted in Advocacy/Policy, Take Action | Tagged childrens rare disease network, FDA, Food and Drug Administration, howard liebers, marbleroad, national organization for rare disorders, NORD, Patricia Richardson, Rare Disease, Undiagnosed | 1 Response

national organization for rare disorders

The Tour de France and Testicular Cancer

Make Your Voice Heard

THE DISEASE MAY BE RARE, BUT HOPE SHOULD NOT BE

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