A Life with PKU (Phenylketonuria)
‘THIS IS MY NORMAL’ Kevin Alexander is a normal guy. He likes to play electric guitar, video games, and write music. He enjoys listening to movie sound tracks, playing in a band and is a professional Videographer. What most people would not realize about Kevin is he is living with Phenylketonuria (PKU) – [...]
Health and Human Services Secretary Adopts New Recommendation on Newborn Screening
Health and Human Services Secretary Adopts New Recommendation on Newborn Screening Recommended Uniform Screening Panel now to include Critical Congenital Heart Disease WASHINGTON, DC – September 22, 2011 – Health and Human Services Secretary Kathleen Sebelius adopted the recommendation of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) that Critical Congenital [...]
ACTION ALERT FOR MINNESOTA!
Foward from Kathy Stagni of the Organic Acedemia Association, www.oaanews.org : Dear Friends, Thank you all for participating in today’s conference call. The bills, Omnibus bill SF 760 and the stand alone bill SF 1017 are moving quickly through the Minnesota Senate. Soon, they will go to the House. We are trying to get parents [...]
CBS TALK SHOW “THE DOCTORS” TO FOCUS ON THE IMPORTANCE OF NEWBORN SCREENING, FEATURING ACTOR SCOTT BAIO AND HIS WIFE RENEE
On Monday, December 7th, The Doctors will be discussing the importance of comprehensive Newborn Screening with special guests, Scott and Renee Baio. Opening the show will be the Save Babies Through Screening Foundation’s (SBTS) produced Newborn Screening PSA, featuring Scott and Renee Baio. Tune in to see Scott and Renee visit a brand new mom [...]