World Rare Disease Day: A Stunning Show of Support Across The Miles
February 29 was not just another day for the family of a boy named Hayden with ASLD or Adenylosuccinate Lyase Deficiency. HOPE traveled across the miles of the Mississippi Delta to as far north as Kentucky down south through Tennessee, Arkansas, Missouri and Louisiana. It was an incredible show of support for Hayden and all [...]
Rare Disease Day 2010 Photo and Video Contest Winners
The winners of the 2010 EURORDIS/Rare Disease Day photo and video contest were announced.