ACTION ALERT: Wednesday RARE Disease Caucus Meeting needs your immediate attention!
Help ensure the first Rare Disease Caucus Breifing is a success! We want as many staffers to attend as possible to learn about the issues affecting the rare disease community. This is critically important and one of those moments where we need to come together and support what will ultimately benefit all those touched by [...]
Rare Disease Caucus Announced
John Crowley announced the Rare Disease Caucus this week (link here). Leaders include Congressman Fred Upton and Congressman Joseph Crowley. This is exciting news for the rare disease community. Hoping great things come from this. // CC Recommend on Facebook Share on Linkedin share via Reddit Share with Stumblers Tweet about it Subscribe to the [...]