Meet CheckOrphan
A big thanks to the folks at CheckOrphan for celebrating the birthday of blue jeans with us on May 20. Read the CheckOrphan blog post “Happy birthday, Blue Jeans!” – THURSDAY, MAY 20, 2010 Happy birthday, blue jeans! When you think about it, there is a close relationship between jeans and genes: they are both [...]
Action Alert: PKS Kids Needs Your Help
Pallister-Killian Syndrome affects fewer than 300 known cases in the world. So, yes, it is a rare disease and we all know how that feels don’t we? PKS Kids (http://www.facebook.com/l/f14ec;www.pkskids.net) is holding its biennial medical conference in NJ in June. It means so much for the families to get together to share successes and stories [...]
Rare Disease wins spot as Top 10 Idea at Change.org!
We did it! Link HERE. More details soon. Thank you to everyone who made this happen! Recommend on Facebook Share on Linkedin share via Reddit Share with Stumblers Tweet about it Subscribe to the comments on this post Print for later Bookmark in Browser Tell a friend
Your vote matters for rare disease!
Less than 4 days left for the Change.org vote (ends on Friday, March 12). We need to finish in the top 10. Vote today (and every day through Friday, March 12 at 5 est) — and ask family and friends to do the same! You can vote every 24 hours, you may need to clear [...]