Change.org Rare Disease Campaign Update
I met our rare disease campaign Change.org team a little over a week ago (by telephone). They sound great – Matt, Robin, Josie and Maria. I’ve been chatting with rare disease community folks getting thoughts on the campaign – Sharon Terry, Imel Kakkis, Chris Austin and Brad Margus. I’ve been reading lots of different things [...]
Orphan Drug Development for dummies! Well not really!
Keck Institute to host a ‘How To’ workshop on developing Orphan Drugs – this is one parents perspective and quest to build an effective treatment to help save her daughters lives. http://addiandcassi.com/wordpress/the-road-to-building-a-new-orphan-drug-am-i-mad/ Recommend on Facebook Share on Linkedin share via Reddit Share with Stumblers Tweet about it Subscribe to the comments on this post Print [...]