Rare Disease in Public Spaces

Parent Essay: It All Happens in the Grocery Store.

By KellyS on February 23, 2010

When you have a special needs child, (or in our case, special needs children) often times you get messages from the “Universe”. Life is so chaotic and crazy that you just can’t be bothered to stop and listen to people anymore! You can’t handle the things that regular people have to say, so you just [...]

Posted in Family Life, Featured | Tagged Children with Rare Disease, children's rare diseases, grocery store with kids, joubert syndrome, kids, kids with special needs, Life, Parent Advocate Perspective, Parent Humor, pediatric rare disease, public awareness, Rare Disease in Public Spaces, Rare Disease Perspective, rare disorder, rare disorders, Rare Mom Humor, Relationships, Special Needs, special needs children, special needs kids, Why Me? | 2 Responses

Rare Disease in Public Spaces

Parent Essay: It All Happens in the Grocery Store.

THE DISEASE MAY BE RARE, BUT HOPE SHOULD NOT BE

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