Schools Can 'Wear That They Care' – Support for Rare Disease Day
Global Genes Project is making it easy for children across the country to show that they CARE ABOUT RARE!!! School children are getting ready to participate in ‘Wear That You Care’ to show support for World Rare Disease Day February 28! Wearing Jeans is a simple way to get involved and support this community in [...]
Facebook Support Group
The Dare To Hope Foundation has created a new version of our on-line support group, Ainsley’s Village, for parents of children with rare, complex, chronic, critical & undiagnosed medical issues. This new group follows the new Facebook Group format. It is a closed group to help maintain some privacy for families, members will see the group [...]
The Council of Mothers (and a few devoted dads)
The Council of Mothers (and a few devoted dads) convenes as necessary in the wee hours of the morning, the midday afternoon on holidays, the Tuesdays after checkups and at all other times deemed necessary by its members. Together we share one another’s questions, worries, and our greatest common fear – the loss of our [...]
Blog for Rare, a success and follow-up!
Feedback so far from Blog for Rare (I can’t resist a kind word): Thanks for the wonderful opportunity – Love this! (Tanya Lachance) Looks great, thanks Catherine! (Yolaine Dupont) Thanks! This has been on my To Do list for 4 days. ‘Glad I got it DONE! (Hug Your Kids Today) (Elizabeth Joshi commented on your [...]
Blog for Rare! Bloggers from around the world come together for rare disease awareness and support for World Rare Disease Day 2010 (Feb. 28). #blog4rare
Welcome to the first official “Blog for Rare.” We’re bringing people from across the world together this week in celebration of World Rare Disease Day 2010 (February 28). This SNiPs post is a mix of web links to specific blog posts and to bloggers who have a connection to rare disease (a blog roll [...]