RARE Project » Rare Siblings Rock http://rareproject.org RARE disease awareness, support, advocacy, & research Thu, 17 May 2012 21:31:56 +0000 en hourly 1 http://wordpress.org/?v=3.3.2 Meet Shefali J., Our first guest sibling blogger (age 7). http://rareproject.org/2010/05/15/meet-shefali-j-our-first-guest-sibling-blogger-age-7/?utm_source=rss&utm_medium=rss&utm_campaign=meet-shefali-j-our-first-guest-sibling-blogger-age-7 http://rareproject.org/2010/05/15/meet-shefali-j-our-first-guest-sibling-blogger-age-7/#comments Sun, 16 May 2010 00:30:37 +0000 nboice http://RAREproject.org/blog/?p=1922 Shefali and Shaan PS

i have a brother named  shaan

he has a disabilty called joubertsyndrome

he cant walk he cant talk he cant see very well either

when he was born he had a little bit of  yellow on his skin.

he takes therapy he also loves toy with light and sound

and that about shaan what makes me sad about him is i wish he  didint have joubert syndrome

what makes me happy about him is i know that when i see some body with a problem i care a lot.

By Shefali J. (age 7)

]]> http://rareproject.org/2010/05/15/meet-shefali-j-our-first-guest-sibling-blogger-age-7/feed/ 2 "How To" – A Jean Ribbon for Global Rare Disease Day http://rareproject.org/2010/01/04/how-to-a-jean-ribbon-for-global-rare-disease-day/?utm_source=rss&utm_medium=rss&utm_campaign=how-to-a-jean-ribbon-for-global-rare-disease-day http://rareproject.org/2010/01/04/how-to-a-jean-ribbon-for-global-rare-disease-day/#comments Tue, 05 Jan 2010 02:04:19 +0000 Catherine Calhoun http://RAREproject.org/blog/?p=985 Ribbon How To 1 of 2

Ribbon How To 2 of 2Ella with Ribbon

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