Illinois School Promotes Rare Disease Day
Two Hearts Rock and Rett Syndrome Having a rare disease makes us different. Making an impact in the minds of children by helping them understand what it means to be different through charitable acts is inspiring. When we are also able to influence our children about the importance of what it means to have [...]
The Global Genes Project Aims to Battle Rare Disease Through the 'Vote4Hope' Campaign and Pepsi Refresh Competition
The Global Genes Project Aims to Battle Rare Disease Through The ‘Vote4Hope’ Campaign and Pepsi Refresh Competition Over 15 Million Children in America Are Estimated To Suffer From 7000 Unique Rare Diseases; Children Unite As ‘Ambassadors of Hope’ To Win $250K Pepsi Grant For The Global Genes Fund DANA POINT, CA – September 1, 2010 [...]
Pepsi Refresh Ideas that Help Kids
We are crowdsourcing ideas from the Pepsi Refresh ideas campaign. If you know of a pending idea that benefits kids with rare disease, please post the url on the wall of the Children’s Rare Disease Network Facebook page so that we can add it to the Pepsi Refresh tab. Vote this link, cut and paste [...]