SNiPs

Blog for Rare! Bloggers from around the world come together for rare disease awareness and support for World Rare Disease Day 2010 (Feb. 28). #blog4rare

By Catherine Calhoun on February 21, 2010

Welcome to the first official “Blog for Rare.” We’re bringing people from across the world together this week in celebration of World Rare Disease Day 2010 (February 28). This SNiPs post is a mix of web links to specific blog posts and to bloggers who have a connection to rare disease (a blog roll [...]

Posted in Featured, Global Community | Tagged #blog4rare, #raredisease, Blog Action Day, Blog Action Day for Rare Disease, Blog for Rare, Blog for Rare 2010, Children, Children with Rare Disease, childrens rare disease network, Collaboration, communication, connecting children and families with rare disease, Genetics, Genzyme, Global Effort, Global Effort for Rare Disease, Global Genes Project, joubert syndrome, kids, National Institutes of Health, NIH, NORD, pediatric rare disease, public awareness, Rare Disease, Rare Disease Awareness, Rare Disease Research, Rare Disease Support, rare disease treatments, rare disorders, SNiPs, Together for Rare Disease, Together for Rare Diseases, Undiagnosed, World Rare Disease Day | 2 Responses

Blog for Rare Disease – Unite Bloggers, World Rare Disease Day!!

By nboice on February 8, 2010

BLOG for Rare Disease! We want to unite bloggers to raise awareness and support for rare disease. How can you help? We need everyone – moms, dads, family, friends, medical bloggers, pharma bloggers – anyone with something to say about rare disease. There is no limit on the number of posts, the type of posts [...]

Posted in News | Tagged Blog for Rare, childrens rare disease network, orphan disease, Rare Disease, rare disease blog, SNiPs, World Rare Disease Day | 2 Responses

SNiPs

Blog for Rare! Bloggers from around the world come together for rare disease awareness and support for World Rare Disease Day 2010 (Feb. 28). #blog4rare

Blog for Rare Disease – Unite Bloggers, World Rare Disease Day!!

THE DISEASE MAY BE RARE, BUT HOPE SHOULD NOT BE

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