NeuroDetour: A Conversation with Melanie Miller #FlameHeART
The Flammable Heart Exhibition is coming up Aug 7-13 for National Health Center Week. This post is a brief but candid look at the world of complex illness, and how MarbleRoad is trying to find creative ways to help people in need.
Social Security, Medicare and Obama-care: The Real Story
When my daughter announced that she’d received a small scholarship for the college of her choice, and that I’d pay for the remainder, I had two simultaneous thoughts: I can’t afford it, and it has to be done. Decades ago, When America began providing guaranteed income and medical care for the elderly, we faced the [...]
Clinical Trials for Rare Disease Patients – Legislation needs your support!
We wanted you to be aware of pending Federal legislation that may be significant for you and for our rare disease community. In June, legislation that enables individuals with rare diseases to participate in clinical trials without losing eligibility for public healthcare benefits was sponsored by Senators Ron Wyden (D-OR), Christopher Dodd (D-CT), Richard Durbin [...]