New York Times Opinion – NOTES FROM A DRAGON MOM!
Dear Emily, So many of our community members sent me this story (ORIGINALLY PRINTED IN NY TIMES). Without question this story needed to be shared again and again. Emily, you are a part of a community of millions of Dragon Parents – incredible, strong, compassionate, tenacious, loving. . . I could go on. You, [...]
When Doctors Don’t Know How to Help – A Parent Perspective
When Doctors Don’t Know How to Help From misdiagnosis to no diagnosis … what can a parent do? First Posted on Parent Society By lisamorenodickinson Have you ever been in this situation? You’re in a doctor’s office (or at a hospital) with your sick child and the physician says, “We don’t know what to do.” [...]
THE LANGUAGE OF HUGS – BY MICHELLE NICHOLS
Sometimes there aren’t easy solutions to complex medical problems. Often, a hug can help. It’s amazing how much pain and anxiety you can relieve with a simple hug. Hugs are also like boomerangs – when you give one, you get one. And who couldn’t use a hug? I wrote this poem for the 30 Day [...]
GLOBAL HUG YOUR KID'S DAY – JULY 18, 2011
HUG YOUR KID – EVERYDAY!! When my son, Mark, had brain cancer, it was easy to fall into the bad habit of thinking of him only in terms of his illness – his symptoms, medications, treatments, doctors, protocols, therapies – and forgetting he was also a little boy, who needed laughter, smiles, and hugs. In [...]
'THE HILL' Reports: Help children with rare diseases get the new medicines they need
Having a seriously ill child is always difficult and painful. It’s even more so when a child’s illness is one of the 7,000 rare diseases for which cures and treatments are hard to find. Rare diseases affect more than 15 million children in the United States. A disease is considered rare if it affects less [...]
Special Needs ~ A Definition
I get a lot of questions from individuals asking me what quantifies a child with special needs? Are all Russell-Silver Syndrome children special needs children? Those are two very good questions. Anyone who does research on the internet will find a myriad of definitions of special needs. According to the Wikipedia site: http://en.wikipedia.org/wiki/Special_needs , “In [...]
Parent Essay: It All Happens in the Grocery Store.
When you have a special needs child, (or in our case, special needs children) often times you get messages from the “Universe”. Life is so chaotic and crazy that you just can’t be bothered to stop and listen to people anymore! You can’t handle the things that regular people have to say, so you just [...]