Together for Rare Diseases

Blog for Rare! Bloggers from around the world come together for rare disease awareness and support for World Rare Disease Day 2010 (Feb. 28). #blog4rare

By Catherine Calhoun on February 21, 2010

Welcome to the first official “Blog for Rare.” We’re bringing people from across the world together this week in celebration of World Rare Disease Day 2010 (February 28). This SNiPs post is a mix of web links to specific blog posts and to bloggers who have a connection to rare disease (a blog roll [...]

Posted in Featured, Global Community | Tagged #blog4rare, #raredisease, Blog Action Day, Blog Action Day for Rare Disease, Blog for Rare, Blog for Rare 2010, Children, Children with Rare Disease, childrens rare disease network, Collaboration, communication, connecting children and families with rare disease, Genetics, Genzyme, Global Effort, Global Effort for Rare Disease, Global Genes Project, joubert syndrome, kids, National Institutes of Health, NIH, NORD, pediatric rare disease, public awareness, Rare Disease, Rare Disease Awareness, Rare Disease Research, Rare Disease Support, rare disease treatments, rare disorders, SNiPs, Together for Rare Disease, Together for Rare Diseases, Undiagnosed, World Rare Disease Day | 2 Responses

Make Rare Disease a Top USA Health Care Priority, Vote Today at Change.org – 25 Million+, It is time to care about rare disease.

By Catherine Calhoun on February 1, 2010

For the millions and millions of kids and adults, brothers and sisters, moms and dads, families of every sort, friends, doctors, researchers, non-profits, foundations, research institutions, hospitals and advocacy groups, for everyone touched by rare disease, put on your blue jeans, put on your blue jeans denim ribbon, and vote for rare disease at Change.org [...]

Posted in Featured, News | Tagged Collaboration, National Institutes of Health, NIH, NIH Office of Rare Diseases Research, orphan disease, orphan drugs, pediatric rare disease, Rare Disease, rare disease and children, Rare Disease Registry, Rare Disease Research, rare disease treatments, Rare Diseases Registry, Rare Diseases Research, rare disorder, rare disorders, Together for Rare Disease, Together for Rare Diseases, Vote for Rare Disease, Vote for Rare Diseases | Leave a response

Together for Rare Diseases

Blog for Rare! Bloggers from around the world come together for rare disease awareness and support for World Rare Disease Day 2010 (Feb. 28). #blog4rare

Make Rare Disease a Top USA Health Care Priority, Vote Today at Change.org – 25 Million+, It is time to care about rare disease.

THE DISEASE MAY BE RARE, BUT HOPE SHOULD NOT BE

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